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Connect

Connect

Looking to connect with others who are or have been on a similar journey?
Independent patient organsiations can help you find additional resources and support.

Looking to connect with others who are or have been on a similar journey? Independent patient organsiations can help you find additional resources and support.

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Disease state
State

Address book

Rare Voices Australia
Rare Voices Australia

Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. Established in 2012, RVA works with all key stakeholders to drive the best outcomes for Australians living with a rare disease.

+61 (0) 499 549 629

helpline@rareportal.org.au

www.rarevoices.org.au

Genetic Alliance Australia
Genetic Alliance Australia

A tax-deductible registered charity, formed in 1988 to provide support and information for individuals and families affected by a genetic condition.

+61 (2) 929 583 59

info@geneticalliance.org.au

www.geneticalliance.org.au

Fabry Australia
Fabry Australia

A patient-run non-profit organisation founded in 1994 that supports individuals with Fabry across Australia.

admin@fabry.com.au

www.fabry.com.au

Gaucher Association Australia & New Zealand
Gaucher Association Australia & New Zealand

A non-profit association with the mission to Improve the health and wellbeing of Australian and New Zealander Gaucher patients through community building, education, advocacy, and support of research.

info@gaucheranz.com.au

www.gaucheranz.com.au

Transplant Australia
Transplant Australia

Transplant Australia is a national charity dedicated to supporting transplant recipients, living donors, donor families, and those awaiting transplants through advocacy, education, and programs that promote active lifestyles and raise awareness about organ and tissue donation. 

  • 1800 827 757
  •  contactus@transplant.org.au
  •  www.transplant.org.au
HAE Australia
HAE Australia

A not-for-profit patient advocacy organisation dedicated to serving persons with hereditary angioedema, in Australia and New Zealand. 

  •  info@haeaustralasia.org.au
  •  zoe@haeaustralasia.org.au
  •  www.haeaustralasia.org.au
Arrow
Arrow

At Arrow, our target is clear. We aim to provide personalised support, healthcare training and research funding to help every Australian enduring tough but lifesaving bone marrow and stem cell transplants. 

  •  +61 (2) 8398 8149
  •  info@arrow.org.au
  •  www.arrow.org.au

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This website provides information and resources to the Australian public. It is not intended to replace the advice of your healthcare professional.
Please consult your healthcare professional if you have questions regarding a condition or treatment.

Takeda Pharmaceuticals Australia Pty Ltd. ABN 71 095 610 870 Sydney, Australia
C-ANPROM/AU/CORP/0111 Last edited March 2026
© Takeda Pharmaceuticals Australia Pty Ltd. All rights reserved.

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